Patient Advice
Topic 1: Get my life back

Allow yourself to be you
Scott’s advice: After a year and three months of really intensive medical intervention, I needed a break. When I was on the inpatient unit, weekends were mine to do as I wanted. I think that it’s really important to give yourself time as a patient to really rest and just allow yourself to be you as well, rather than being a patient.

Give yourself time
Helen’s advice: I had a plan that I was going to go to Creamfields music festival six weeks after discharge. I was going with a group of uni friends and I was adamant I was going. Later on, I realised that it’s not going to be possible for me to go. Although I didn’t make that one, I went the following year. So I made up for it by giving myself a bit of time.

Five different ways
Elsie’s advice: I did some tapestry. I found that I can do the stitches, if someone threads the needle. It’s quite surprising what you can do with one hand, really. I finished one and I’ve started another one.

Do the same things, but differently
Scott’s advice: I think about how I would have done things before my stroke. Rather than saying ‘I can’t now do that because I’ve had a stroke’, actually I think about ‘okay, how can I achieve that same end goal?’ Maybe the way of achieving it is different, but if you want to achieve the same types of things you can.